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Patient voice

How DCTs Can Help Pediatric Clinical Research – Insights From Site Experts

PediatricSites perspectives
In this second episode on pediatric clinical trial challenges, Begoña Nafria, pediatrician and patient engagement lead at SJD Barcelona Children’s Hospital (Spain), and Vivienne Van de Walle, pediatrician and Director/Research...

Exploring The Specific Challenges Of Pediatric Clinical Trials – Insights From Site Experts

PediatricSites perspectives
In this first episode on pediatric clinical trial challenges, Begoña Nafria, pediatrician and patient engagement lead at SJD Barcelona Children’s...

How is the Kayentis Clin’form solution perceived by site staff users? 

Sites perspectives
The survey, conducted in November 2022, involved 239 site respondents from Europe (47%), Americas (27%), Asia (20%), and the Middle...

Working with patient associations: What is the key to a positive interaction?

Patients insightsRare disease
https://www.youtube.com/watch?v=R65yKqxo4zQWhat rare disease patients and families want is a simpler life.Discover here what makes the relationship between the members of...

How a patient association gave rise to a company

Patients insightsRare disease
A patient association in rare diseases is first and foremost families who all have one thing in common: they need...

Direct insights from cancer patients: How they help us understand disease burden and the need for an individualized approach

OncologyPatients insights
Cultural differences and individual preferences have a significant impact on healthcare and clinical trial experience. Solutions exist in attempt to...

Working in collaboration with patient associations: insights from Estelle Haenel, Kayentis Medical Director

Patients insights
Whilst we hear a lot about working in collaboration with patient representatives, not so many industrial stakeholders are actually doing...

Patients as partners in clinical trials – Survey results

Patients insights
We collaborate with patients to characterize their clinical trials expectations and better understand their readiness for remote clinical trials.This 11-question...
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About the author
Picture of Marc Chaperon

Marc Chaperon

Estelle brings 20+ years of experience in pre-clinical and clinical research from Top 5 Pharma and Biotech firms. Leading projects across Phases 1 to 4 in diverse therapeutic areas, she offers deep insights into clinical science, operations, and regulatory intricacies. Appointed as Chief Medical Officer at Kayentis in May 2019.

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